Down Syndrome Ireland have recently published the New Parent Pack, with the help of people with Down syndrome, their parents, NCH Tallaght, and Down Syndrome Ireland staff. It hails the most up to date information on being a new parent for a child with Down syndrome.
Guidelines for Parents – Support Feeding & Oral Development in young children with Down Syndrome, Congenital Heart Disease and Feeding difficulties.
This booklet is intended to be used as a reference for the first 2 or 3 years of life. You are not expected to read it from cover to cover, but to dip in and out of it as questions arise or as you need guidance regarding your baby’s next step. It is also not intended to replace direct contact with the multidisciplinary team.